#PurpleFriday (7 December 2018) will see the world Going Purple in aid of Crohn’s & Colitis UK.
Go Purple at work, school, university or in the gym – wherever you can! Invite your colleagues, your friends or family to be involved – get them to Go Purple for Crohn’s & Colitis UK.
As you know from previous blog posts I have Inflammatory Bowel Disease (IBD) in the form of Ulcerative Colitis, to be specific I have Ulcerative Proctitis which effects the rectum area, rather than the whole bowel. Crohns and Colitis website has an excellent explanation of Ulcerative Colitis here
I had been receiving DLA and then PIP for the past 5 years or so, because of my mental health and Ulcerative Colitis. Following a mid award review which started in August 2017 and a medical assessment by Capita in November 2017, my PIP award ended on the 11th December 2017.
I have been reflecting on this a lot over the past 6 months. Financially the impact was significant, as it meant I also lost my Tax Credits award from the 11th December, and any day I expect a bill for £500 over payment following the year end tax credit review.
I blogged about my ‘dream’ job a few weeks ago - 'The Next Step 2017' and applied for the job that weekend.
I have learnt a lot about myself and my anxiety in the following days and weeks. So here is what happened and my reflections after the event.
[I have used this image, as it sums up how the phone ringing does affect me and my anxiety - acknowledgement #CollegeHumour]
After 2 to 3 years I had my first flare up of Ulcerative Colitis in January and February 2016. I think this was a result of being run down with the flu and being depressed.
To find out what was happening I had a few trips to the GP and an endoscopy and today a appointment with the Inflammatory Bowel Disease (IBD) nurse clinic at Kettering General Hospital. This was a highly beneficial appointment as I found out a lot, that perhaps I should have been told when I was originally diagnosed in 2003.
I wrote myself a note to remind myself, so thought I would share that with you:
Well the start of a new year (2016) deserves a blog post. The evidence is here to show that I had over done it towards the end of last year – I have had flu for the past 10 days and currently have a bad chest, don’t want to say chest infection. So if I didn’t already know it , the flu confirmed that I had done to much for me, which triggered my dark thoughts and difficult period in November and early December.
Wow, it has been a month and quite a bit has happened.
A month ago, I blogged that I recognised I was stuck in a cycle with anxiety feeding IBS feeding anxiety, which was at the least hindering my recovery. So I have had a string of appointments over the past month, which included, GP, Psychiatrist, Gastroenterologist, and an Endoscopy.
Hi, moneys getting tight for us as well as many many other households. I must admit I am a keen fan of Lidl's and my distrust and hate of Tesco's grows every day, but lots not go there today.
Many purpose of this blog is that I wanted to check my own benefits entitlement as we have had a few changes. I used the government one - Benefits Adviser which i found poor as it didn't touch on DLA or CA. But then found via my trusty pal, Martin Lewis entitledto, which i found was great to use and you could enter different scenerios and see what the effect was on most benefits. So if you need a to check your benefit entitlement, I suggest entitledto
By the way, having worked solidly for 30 years and paid a fortune in tax, 'entitled to' is what I and the majority of others are, when it comes to the benefit system.
6th June 2013
You may now know that I suffer from Ulcerative Colitis (UC) as well as Anxiety and Depression.
I have been thinking more about the link between my Ulcerative Colitis and my Anxiety:
For me the main challenge of Ulcerative Colitis, other than the discomfort, 10 plus visits to the loo every day and during an attack, bleeding, bloating, tiredness and back ache, is lack of bowel control.
NACC have established a team focusing particularly on young people aged between 16 and 29 who suffer with IBD. NACC's has a new micro site for young people
They are currently caring out a survey of young people aged 16-29 with IBD, finding out your thoughts on a number of topics such as medication, surgery, transition, education and relationships.
I was diagnosed in 2000 with Ulcerative Colitis (UC), which is Inflammatory Bowel Disease (IBD)
Ulcerative Colitis is a form of colitis, a disease of the colon (large intestine), that includes characteristic ulcers, or open sores. The main symptom of active disease is usually constant diarrhea mixed with blood................