#PurpleFriday (7 December 2018) will see the world Going Purple in aid of Crohn’s & Colitis UK.
Go Purple at work, school, university or in the gym – wherever you can! Invite your colleagues, your friends or family to be involved – get them to Go Purple for Crohn’s & Colitis UK.
As you know from previous blog posts I have Inflammatory Bowel Disease (IBD) in the form of Ulcerative Colitis, to be specific I have Ulcerative Proctitis which effects the rectum area, rather than the whole bowel. Crohns and Colitis website has an excellent explanation of Ulcerative Colitis here
Crohn’s and Colitis week is happening now: 1st to 7th December 2017, being promoted by wonderful charity Crohn’s & Colitis UK, to raise awareness of Inflammatory Bowel Disease (IBD), with a focus on it being a hidden illness or disability. The charity has done some fantastic work with supermarkets nationally getting signage added or changed to disabled toilets to get the message out that not every disability is visible – so that Ulcerative Colitis sufferers like me, don’t have to worry about being challenged for using disabled toilets when we need to – because we ‘look ok’.
I thought I would share with you what I have learnt about the financial help that is available to those with a disability. This blog is based on my experience of claiming benefits and getting financial help as I have a long term ill health in the form of a mental illness and Inflammatory Bowel Disease. I have linked the benefit types to relevant part of disability benefits on GOV.UK website
I blogged about my ‘dream’ job a few weeks ago - 'The Next Step 2017' and applied for the job that weekend.
I have learnt a lot about myself and my anxiety in the following days and weeks. So here is what happened and my reflections after the event.
[I have used this image, as it sums up how the phone ringing does affect me and my anxiety - acknowledgement #CollegeHumour]
As part of Crohn’s and Colitis Awareness Week (1st - 7th December 2016) the charity Crohn’s and Colitis UK are offering a poster creation app, that lets you build your own poster about how Crohn's or Colitis impacts you. So here is my poster about how Ulcerative Colitis impacts me and what helps me through.
I am lucky, that I do not have too many flare ups, but when I do, I feel incredibly tired, bloated, get bloody loose stools and have to use Pentasa Enema's 2 or 3 times a day on top of taking Pentasa tablets twice a day. For me a flare up last for a few weeks, but I become very house bound and have trouble finding the best food to eat and I hate using the Enema's, but they do help and directly work on the inflammation. As I have said in my poster the care, support and understanding of my wife makes it all a lot easier.
Hopefully this awareness week and the social media campaign of #CrohnsColitisAndMe will help raise the awareness of this invisible disability.
After 2 to 3 years I had my first flare up of Ulcerative Colitis in January and February 2016. I think this was a result of being run down with the flu and being depressed.
To find out what was happening I had a few trips to the GP and an endoscopy and today a appointment with the Inflammatory Bowel Disease (IBD) nurse clinic at Kettering General Hospital. This was a highly beneficial appointment as I found out a lot, that perhaps I should have been told when I was originally diagnosed in 2003.
I wrote myself a note to remind myself, so thought I would share that with you:
Wow, it has been a month and quite a bit has happened.
A month ago, I blogged that I recognised I was stuck in a cycle with anxiety feeding IBS feeding anxiety, which was at the least hindering my recovery. So I have had a string of appointments over the past month, which included, GP, Psychiatrist, Gastroenterologist, and an Endoscopy.
So, to start, an anxious visit to the GP: who as usual seemed to lack empathy. I explained my bowel symptoms and link to anxiety. He concluded that I displayed the symptoms of Irritable Bowel Syndrome and suggested I discuss it more at my next Gastroenterologist appointment.
Thankfully my appointment with the Gastroenterologist was the following week. He agreed that it sounded like IBS and said having looked at my blood test results that my IBD was under control. He suggested I have an Endoscopy to check my bowel as I had not had one for ten years. In terms of the IBS he suggested a drug called Amitriptyline, but because of my other medication wanted the Psychiatrist to prescribe it.
I then had my appointment with the Psychiatrist, where I discovered that the Gables Mental Health Hospital site has been closed and that I had another new doctor. We explored my medication and I was reluctant to change the Trazodone, as it has been good for me. So the Amitriptyline was not an option if I was to stay on Trazodone. He did though increase my dose of Trazodone to 150mg a day.
My outpatients appointment for the Endoscopy was fine. The consultants letter to my GP said there was no signs of inflammation or history of inflammation and that I no longer needed to take Asacol.
So the outcome of these medical appointments seems to be a diagnosis of Irritable Bowel Syndrome (IBS), but I do not have IBD. So this means I can now focus on my Anxiety and IBS.
17th July 2013
PDF File Version for Blog Post- Visits to GP, Psychiatrist and Gastroenterologist, for printing or saving
Sorry everyone - bowel talk! So I have now worked out that my bowel control problems are not necessarily a symptom of my Ulcerative Colitis, (Inflammatory Bowel Disease) and have now been diagnosed with Irritable Bowel Syndrome (IBS).
So how did I get there?
Well I recognised that I had got caught up in a vicious cycle of getting anxious about bowel control, which meant my bowels reacted, which means my anxiety is proved right and round and round it goes, meaning I stay in the safety of my home. Bowel accidents do happen and have happened for many years, thereby confirming to my brain that it is right to be anxious.
So of to the GP I went and explained my thoughts, he said discuss it with my Gastroenterologist, with whom I had an appointment coming up soon.
So at my appointment with the gastroenterologist I explained again. He confirmed I probably had IBS linked to getting stressed and anxious. He suggested Amitriptyline, for stopping signals from my brain to bowel, but said that I would need to discuss it with my Psychiatrist, because he did not know how it would react with my other medication.
Luckily (again) I had an appointment with my Psychiatrist fairly soon. So we discussed it all, for me again. He concluded that Amitriptyline could not be combined with Trazodone. As Trazodone has been my best medication to date, I did not want to change it. So we concluded we would have to leave Amitriptyline medication for stopping signals from my brain to bowel for the time being!
It took me a week to recover from the anxiety of these trips and successfully entrenching my brains control of my anxiety and bowels. But I will not give up!
See my separate posts on my current medication [LINK TO FOLLOW] and trip to Psychiatrist [LINK TO FOLLOW]
22nd June 2013
Hi, moneys getting tight for us as well as many many other households. I must admit I am a keen fan of Lidl's and my distrust and hate of Tesco's grows every day, but lots not go there today.
Many purpose of this blog is that I wanted to check my own benefits entitlement as we have had a few changes. I used the government one - Benefits Adviser which i found poor as it didn't touch on DLA or CA. But then found via my trusty pal, Martin Lewis entitledto, which i found was great to use and you could enter different scenerios and see what the effect was on most benefits. So if you need a to check your benefit entitlement, I suggest entitledto
By the way, having worked solidly for 30 years and paid a fortune in tax, 'entitled to' is what I and the majority of others are, when it comes to the benefit system.
6th June 2013
You may now know that I suffer from Ulcerative Colitis (UC) as well as Anxiety and Depression.
I have been thinking more about the link between my Ulcerative Colitis and my Anxiety:
For me the main challenge of Ulcerative Colitis, other than the discomfort, 10 plus visits to the loo every day and during an attack, bleeding, bloating, tiredness and back ache, is lack of bowel control.
NACC have established a team focusing particularly on young people aged between 16 and 29 who suffer with IBD. NACC's has a new micro site for young people
They are currently caring out a survey of young people aged 16-29 with IBD, finding out your thoughts on a number of topics such as medication, surgery, transition, education and relationships.
Things I do to manage my Ulceriative Colitis:
I was diagnosed in 2000 with Ulcerative Colitis (UC), which is Inflammatory Bowel Disease (IBD)
Ulcerative Colitis is a form of colitis, a disease of the colon (large intestine), that includes characteristic ulcers, or open sores. The main symptom of active disease is usually constant diarrhea mixed with blood................
Search for related blog posts using the search function or 'Categories' or 'Archives' sections below.
Some posts have a 'read more' link which will open the full post.